Dercum’s Disease (adiposis dolorosa) is not only a debilitating painful disease, but often a frustrating one. Patients often struggle to find reliable helpful resources about this disease for themselves, for their medical doctors, for their families, but also for disability and insurance claims. One would think that a disease that’s been documented since the late 1800’s would be widely recognized, but sadly, it’s not the case.
Dercum’s Disease is characterized by painful multiple fatty growths (lipomas and/or angiolipomas) that can vary widely in size. Some growths may be as tiny as a rice grain while others can be quite large and disfiguring. Contrary to some older literature, Dercum’s Disease does affect both men and women- but men currently account for a small fraction of those diagnosed.
This website will provide links and titles to medical articles, support groups, and related information about Dercum’s Disease and some associated disorders. Links will be provided so that articles may be printed or cited as needed.
HINT: To best access all the information here, please click the Category headings.
NOTE: This is an informational-only website; always consult a medical professional for a diagnosis.